Guest Stories

Airiyahna’s Story

Airiyahna’s Story “ I truly felt that we were all family during our wonderful stay at JW House. A Lifelong Friendship and Sisterhood WRITTEN BY WYANNA COLE My name is Wyanna Cole, and I am the parent of a child with Stage 5 Systemic Lupus and Arthritis. I was introduced to JW House by another…

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RJ’s Story

RJ’s Story “ …when she suddenly lost everything, it was nothing short of devastating. A Second Chance Having a child with Ehlers Danlos Syndrome, a rare, incurable genetic condition, can send your life into a tailspin. So when our only child was diagnosed with EDS in October 2014, after a failed hip surgery, we, like…

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Amber’s Story

Amber’s Story “ Mom, I feel at home here – it’s so peaceful and bright! Our Saving Grace WRITTEN BY AMBER’S PARENTS My daughter Amber and I learned about JW House when she was accepted into the Lucile Packard Children’s Physical Therapy PReP Program. My daughter has Ehlers-Danlos Syndrome, which is a connective tissue disorder…

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Ray and Frank’s Story

Ray and Frank’s Story Friends for Life Watching Ray and Frank sitting in the dining room at JW House laughing, sharing stories and teaching each other how to use their iPhones, you might think their friendship had grown over many decades. But their friendship began only five weeks ago at the Cancer Treatment Center (CTC)…

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Sophie’s Story

Sophie’s Story Sophie’s Story WRITTEN BY SARAH AND ALEX, SOPHIE’S PARENTS Sophie was in a big hurry to enter the world. On June 3, 2013, after hours of excruciating pain and emotional anguish, our beautiful baby girl was born weighing only two pounds and 12 ounces. As my husband, Alex, and I sat with our…

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